Yeah, so the goal of posting nightly or daily isn't very easy with 2 infants at home. We have been in head to head combat with gas and constipation with both of them. Owen has gas, and Little Tummies drops have helped that. Lilly on the other hand is constipated, and tonight we started some 1/4 strength apple-prune juice, and that hasn't worked yet, but we are keeping our fingers crossed. Erin one of the super nurses in the NICU helped us out with Lilly... and then the pediatrician called and we are decreasing the Neosure formula to the regular strength rather than the higher calorie version. All and all, I hope this helps.
We loaded up the motley crew today, and went into the NICU to see Grey. He was doing well. I think today he was a little more jaundice from his TPN feedings. I'm guessing that is the culprit. They did do a urine culture to make sure he doesn't have a urinary infection, but I am doubtful, as his labs look great other than the liver labs. I might have to make a morning trip into the NICU to talk to the GI surgery team, and it might be time to tap my watch and ask for him to have his intestine reattached early. I don't want his liver numbers to get too awful before he goes to surgery, nor do I want another uphill battle. Although I am still very optomistic about his health, I am a bit concerned about this, just because any of you that have worked with surgeons know that they deal with their own timelines, and... well.... if it isn't their idea to do it, sometimes it doesn't go over well. That hasn't been my experience at St. V's so far... but let's just say, I know how that type can be. I know that there is a window of opportunity after surgery involving the stages of scar tissue. There is an optimal time to do the surgery allowing the scar tissue to form, but not become fragile etc.... so this would be the reason for waiting. But I don't want to sacrifice his liver either.... ohhhh decisions, decisions. I'll see what they say and go from there.
These pictures are from the day Lilly and Owen went home. Left to right.... Owen, Grey, Lillian. Gotta love these munchkins.
I feel like we are all settling in well. I am so thankful for all the help from my in-laws and my parents. It's a blessing to have people you can count on, and trust.